It's been three weeks since the surgery and I'm doing great! I've decided I have to quit apologizing for not keeping this up.....basically I pretty much suck at it!! My goal is once a week....I'm getting closer, this is the 2nd blog this month!
Surgery was a breeze. I have amazing friends and family that came to the Piper Center just to wait with me until I went back to prep. It was a perfect diversion... they're so smart...I wasn't even thinking about why I was there. When I did go back for prep, I met the anaesthesiologist and told him I needed something for nausea, then talked incessantly to the nurse....that's what I do is talk, talk, talk, when I'm nervous. LLoyd, Mom, and Aunt Georgia came back to say by...well maybe not by..., but to wait with me. As they were leaving the anaesthesiologist came back with a little round bandage to put behind my ear for nausea..... What? I told him I needed the big guns...? I don't remember one thing after he put the little bandage on! I woke up in my room...Lloyd was making sure the nurse knew they were to let me stay as long as I needed....whether the insurance said I could or not. I woke up saying...oh, don't mind him...he's kinda gruff on the outside, but really fuzzy on the inside!! The nurse liked me immediately. The nurses at the Piper Center were awesome, even so, my poor mom slept on an expanda-chair and tended to my every need. When Toni, the day nurse, came back in the morning, she said...."There's no way anyone will let you stay another night. You're getting around and looking to good to stay". So... they sent us home with Valium, Vicadin, an antibiotic, and four drains. Drains are.....icky.. that's the only word I think I should type. I had to wear this lovely camisole thingy with pockets to carry around gunk my body was discharging through little tubes into these little grenade looking things. The first week, my mom had to empty them twice a day.. ...her facial expression demonstrated the fact that she feels the same way as I do about drains!! That week is now kind of a blur, I think I pretty much stayed in bed and my mom waited on me. I'm positive she was pretty much sick of me by the end of the week. I think the drains were the most disturbing part of the whole surgery thing to me. I got two out the first week and the other two the following week. I have to wear this really ugly granny bra 24/7 for.....who knows....I still have it on! Dr. Gawley said everything went well and looks great. He put 300ccs in the expanders during surgery. I guess that's normally not done, normally that would take two "fills".....I guess that's what you call it??... When I went to Dr Freedman, my favorite surgeon, he said the surgery went great, the lump was considerably smaller than it was before chemo. He took out 12 lymph nodes and only 2 were positive. All good news...we already knew the lymph nodes were affected but are pretty sure we got it all. I will have to get radiation, basically as a precaution. When he did his exam he said that every thing looked really good....no .... I mean it, he emphasized...I've seen a lot of this and this looks great!...Okay...really...do you know how hard I had to bite my tongue to not say..."hmp...maybe you should consider NOT sending people to Dr. Scissor Hands with the Lips!!!
The radiation doctor, ....I'm not sure what the official title is....but Dr Kuske, is a leader in the field...He wrote the book on radiation...even if he does say so himself!! Lol! Actually, he is awesome and I think he really did write the book! I like him and his staff a lot. He squeezed me in before the week of Christmas so I wouldn't have to wait till next year....something my "best friend", Dr Meng would never think of. I haven't seen her since October.... He, Dr Kuske, was super kind and took all the time we needed. The only thing I didn't love is that he loves Dr Meng, but he and my GP both said it's not a good idea to switch mid treatment and she's good at what she does.... Soooo, here's the scoop. I meet with Dr. Meng Monday, the 3rd. I should start chemo as soon as possible. I'll do 4 treatments, one every three weeks. A week and a half to two weeks after my last chemo, I'll go see Dr Kuske. It will take him about 10 days to set up the radiation protocol, then I'll get radiation 5 days a week for 6 1/2 weeks. I figure that I'll be done around May, at which time we will have a "WooHoo, I'm Going to Live" party! Dr Gawley won't exchange my expanders for the implants for a year after we complete the radiation. I saw him today. He, again, said everything looks great and that I'm healing fast. He put more fluid in the expanders. Everyone has told me it feels like an elephant sitting on your chest. I don't know what I'm going to feel like tomorrow, but now, it just feels like I had a good pec work out. I told him the whole schedule with the chemo and radiation, but said we might have to shorten the year because I want the new girls by my 50th birthday! He was sure we can work it out! Hmm, I sense another party....that is if I'm not at Mardi Gra....I've had to flash my chest to so many times to so many people I might as well get a bunch of bling in the form of beads for it!!
Hope everyone had a Very Merry Christmas!!! I finally got a few cards out this year....I buy them every year, so I basically had a whole hallmark drawer to pick from.... If you didn't get one, please send me your address....I've got my mac all set up for next year! Okay,... maybe I do have a little to much time on my hands! Let's all pray for a Healthy, Happy, Awesome 2011! That's what I'm wishing for all of you!
My victorious battle with breast cancer. I know I'm going to win...this is to help my friends and family believe! It's a place to check on me whenever and if ever they want. It's my day to day diary, how I'm doing, what I'm feeling and what's next. Feel free to "blog", comment or call when you need to!
Thursday, December 30, 2010
Friday, December 3, 2010
Who is that Hormonal Beast?
I did it again....Now there is ssssoooo much that has gone on I don't even know where to start!! I have really good intentions to keep this up....and really have no excuses,.... but... I'm going with my brain is some foreign mass in my head. To complete a whole thought is the ultimate accomplishment, and if I don't write things down the second it enters this mass then it dissipates. It won't be back for hours...If at all!! I think I'll just hit the high points.
Monday, the 15th. I met with Dr. Freedman, my surgeon. He is by far my favorite Dr. ... He never searches through your chart while talking to you, gives you all the info you need then says "it's your decision".... What a concept. We got things buttoned up for surgery. All I need now is a plastic surgeon!! I keep hearing awesome things about Dr. Gawley.
Tuesday, the 16th was an amazing day. My mom had talked with Dr. Fountis (Sophia) at the Greek Festival....They talked about all of us going to Saint Anthony's Monastery in Florence. When I talked to Sophia, we decided that the week of the 15th would be a good time to go. That was a month ago and I hadn't though of it again (refer to paragraph one!) Monday night she called and said we were going on Tuesday! Oops! So, after I cancelled my Dr. appointment for the day and met Sophia, we drove to Florence. It was just the two of us .... my communication skills obviously should not be classified as skills...because my mom couldn't get away last minute. On the way there, Sophia told me all about the monastery and the monks...I really had no idea what to expect. It took a year before she got in to see Elder Ephraim....that must not have registered, because I knew I was going to get to see him and surely embarrass myself! Sophia always bought a book at the bookstore when she went in and consequently learned a lot in a year. I had the best time getting to know her. She is so kind and easy to talk to. She has taken several people to the monastery and has witnessed many miracles. The monastery is an oasis in the dessert. It's beautiful, lush, and one of the most tranquil places I've ever been. We went to wait to be seen by Elder Ephraim. While waiting, a bus full of Canadian Greeks arrived. Let's just say it was quite amusing and I was really glad I had my evil eye bracelet in my pocket when I was the third or fourth person in! Elder Ephraim looks like light. I don't even know how to explain it. He has light dancing in his eyes. He doesn't speak English and I forgot every Greek word I ever knew the second I sat down..... I was just smiling...kinda like an imbecile....Sophia was translating and when he asked me why I was there I said I didn't know!?? Despite myself, he said a prayer over me, I was forgiven for all my sins and he gave me his prayer rope....right off his wrist! I was truly honored and didn't feel worthy, but really didn't understand the magnitude of the simple act. Sophia was crying, I thought he gave it to me because she had brought me there and he obviously loves her, but she said she had never seen him do that before. It's like having a holy relic. The other day I almost had a heart attack because I accidentally wore it in the shower! I truly feel blessed and can't thank Sophia enough for the experience and her kindness. I'm still not really sure why he gave me his prayer rope, but I do know that if a day goes by that I don't use it, I feel REALLY guilty!!
Friday, the 19th, I went and saw TJ, Dr Meng's assistant. I did a little (or maybe a lot of) complaining. I just appreciate people who walk their talk and don't really care for people who don't... I wasn't looking for a best friend, just an oncologist. I don't want to deal with wondering if I'm getting the right information. TJ is awesome and gets the whole walk/talk thing...he's my new contact. I'll try not to drive him crazy. All in all we have some great results. The chemo is really working. The original size of "my lump" was 4.8 cm and now it's 10 mm. That's better than normal results, so things are looking great. My hemoglobin was really low so now I get a new super stingy shot to try and raise it. Evidently there's a reason I've been such a slug!...More good news!
Tuesday, the 23rd I met Dr. Gawley. I love him and his office staff. My mom even loves him!! He went over all the steps, showed me what things will look like, what's possible and what's not. What a concept! AND there will be minimal scarring...kinda like what a plastic surgeon would do!!! So, I don't really know what the heck has happened since then...It's all kind of hazy. Surgery is on the 7th...Yikes, that happens to only be 3 days away. We put up the Christmas Tree up over the weekend. Today I went and got all the "paraphernalia" I'll need. I got my prescriptions filled, I might test the vicadin just to make sure it works! Other than that, I'm not really sure what else I need to do. I feel like I have all this stuff to do, but don't really know what to do?a lot, but not on anything productive or Christmassy...as in presents. I'm really cranky and hermity ...I'm not sure why anyone would want to spend any time here, but I'm mad at everyone for not coming by....I want people to call, but don't want to talk to anyone!!! What the heck! I've turned into a hormonal beast! So, sorry if anyone has seen this ugly beast emerge. I'm working on getting it under control.....Will write again when I come out of my surgery coma!!
Monday, the 15th. I met with Dr. Freedman, my surgeon. He is by far my favorite Dr. ... He never searches through your chart while talking to you, gives you all the info you need then says "it's your decision".... What a concept. We got things buttoned up for surgery. All I need now is a plastic surgeon!! I keep hearing awesome things about Dr. Gawley.
Tuesday, the 16th was an amazing day. My mom had talked with Dr. Fountis (Sophia) at the Greek Festival....They talked about all of us going to Saint Anthony's Monastery in Florence. When I talked to Sophia, we decided that the week of the 15th would be a good time to go. That was a month ago and I hadn't though of it again (refer to paragraph one!) Monday night she called and said we were going on Tuesday! Oops! So, after I cancelled my Dr. appointment for the day and met Sophia, we drove to Florence. It was just the two of us .... my communication skills obviously should not be classified as skills...because my mom couldn't get away last minute. On the way there, Sophia told me all about the monastery and the monks...I really had no idea what to expect. It took a year before she got in to see Elder Ephraim....that must not have registered, because I knew I was going to get to see him and surely embarrass myself! Sophia always bought a book at the bookstore when she went in and consequently learned a lot in a year. I had the best time getting to know her. She is so kind and easy to talk to. She has taken several people to the monastery and has witnessed many miracles. The monastery is an oasis in the dessert. It's beautiful, lush, and one of the most tranquil places I've ever been. We went to wait to be seen by Elder Ephraim. While waiting, a bus full of Canadian Greeks arrived. Let's just say it was quite amusing and I was really glad I had my evil eye bracelet in my pocket when I was the third or fourth person in! Elder Ephraim looks like light. I don't even know how to explain it. He has light dancing in his eyes. He doesn't speak English and I forgot every Greek word I ever knew the second I sat down..... I was just smiling...kinda like an imbecile....Sophia was translating and when he asked me why I was there I said I didn't know!?? Despite myself, he said a prayer over me, I was forgiven for all my sins and he gave me his prayer rope....right off his wrist! I was truly honored and didn't feel worthy, but really didn't understand the magnitude of the simple act. Sophia was crying, I thought he gave it to me because she had brought me there and he obviously loves her, but she said she had never seen him do that before. It's like having a holy relic. The other day I almost had a heart attack because I accidentally wore it in the shower! I truly feel blessed and can't thank Sophia enough for the experience and her kindness. I'm still not really sure why he gave me his prayer rope, but I do know that if a day goes by that I don't use it, I feel REALLY guilty!!
Friday, the 19th, I went and saw TJ, Dr Meng's assistant. I did a little (or maybe a lot of) complaining. I just appreciate people who walk their talk and don't really care for people who don't... I wasn't looking for a best friend, just an oncologist. I don't want to deal with wondering if I'm getting the right information. TJ is awesome and gets the whole walk/talk thing...he's my new contact. I'll try not to drive him crazy. All in all we have some great results. The chemo is really working. The original size of "my lump" was 4.8 cm and now it's 10 mm. That's better than normal results, so things are looking great. My hemoglobin was really low so now I get a new super stingy shot to try and raise it. Evidently there's a reason I've been such a slug!...More good news!
Tuesday, the 23rd I met Dr. Gawley. I love him and his office staff. My mom even loves him!! He went over all the steps, showed me what things will look like, what's possible and what's not. What a concept! AND there will be minimal scarring...kinda like what a plastic surgeon would do!!! So, I don't really know what the heck has happened since then...It's all kind of hazy. Surgery is on the 7th...Yikes, that happens to only be 3 days away. We put up the Christmas Tree up over the weekend. Today I went and got all the "paraphernalia" I'll need. I got my prescriptions filled, I might test the vicadin just to make sure it works! Other than that, I'm not really sure what else I need to do. I feel like I have all this stuff to do, but don't really know what to do?a lot, but not on anything productive or Christmassy...as in presents. I'm really cranky and hermity ...I'm not sure why anyone would want to spend any time here, but I'm mad at everyone for not coming by....I want people to call, but don't want to talk to anyone!!! What the heck! I've turned into a hormonal beast! So, sorry if anyone has seen this ugly beast emerge. I'm working on getting it under control.....Will write again when I come out of my surgery coma!!
Saturday, November 13, 2010
The Feather that Floated Down and Broke my Camel's Back
Where does the time go?? I started writing this blog the first week of November......ssssoooo much has happened since then so this is going to be a long one!! The following paragraph was written then:
The last couple weeks have flown by....thanks to my Aunt Mary, Aunt Doris and Uncle Dan. They came into town Friday night. It's awesome having some company. I think that's one of the worse parts.... not feeling good enough to get out of the house ...but not feeling bad enough to just be sitting at home alone. Saturday happened to be one of the days I was feeling really good.. I drug Aunt Mary and Thea Georgia all over town getting my errands done. Sunday I went to the Cardinals game with with Lisa and her family. What a game! We had a blast! I went straight from there to trick or treating and the Halloween Party. I think I was asleep before my head hit the pillow! Monday was my last chemo for this round..Yeah!.... Let's get this show on the road. Monday night we had an awesome evening...Greek Style...in other words...lots of food and family! It was awesome. Next week I've got everything scheduled to get going. Wed. is the plastic surgeon and the MRI, then the following Monday is Dr. Freedman, the surgeon, and Tuesday is Dr. Meng.....ready, set, go!!
So... to bring you up to date..I met with the plastic surgeon Dr. Freedman recommended. It was disastrous!! My first impression was not so good....She came into the room with her little cheetah print skirt that was shorter than her lab coat, support hose, 3 or 4 inch heels, and was in her late 50's or early 60's. Lisa is still asking me if I could even believe her lips,...I didn't see them... I never got past the Jersey girl blue eye shadow and cat eye shaped pupil.......but still, really wanted to like her. She asked a few questions, made no eye contact and kept flipping through my file, writing down notes, secret style.....you know, that's when you hold up a paper in front of what your writing and lean down so no one else ..I guess that would be me..can see what it is. Anyway, I told her that Dr Freedman said I probably will be able to keep my skin and nipple..I know...TMI... She looked shocked and said if I had the cancer YOU have I would not recommend it....but Dr Freedman will make the ultimate decision. I told her Dr. Meng said if I can keep my skin I wouldn't have to have "extenders"....She was totally confused and said "I don't know what your talking about". When I explained it's the thing you use to stretch the tissue and muscle...she said "OH...you mean exPanders". .... Really?.... The "T" was really that confusing??!..moving on... she explained what exPanders are and said but they only get so big...Hold the phone. Wait a minute...how big???? Without typing a book, let's just say she said "nothing like what you have". ?? What does that mean? I mean at the moment, since I'm gained weight and refuse to buy bigger clothes, I have a choice. A uni boob in a sports bra or the lovely 4 boob set in my too small D...I know I know, this is WAY to much info, but I tried writing it without it and it doesn't mean as much to me!!!! I crack myself up!!....So, after much coaxing and conversation, I came away with the fact that I am getting B's with scars....I thought I was at a plastic surgeons, wasn't counting on an Edward Scissorhands prophecy....according to Ms. Lips there's no discussion or any other option. When I asked if I will ever have a normal looking chest, she said, "Well, I could show you pictures, or better yet go on line"...What? I mean really? My GP forbids me from going on line. It seemed I was getting my PHD on line when I had hives. Evidently, a little information can be dangerous!! ...Back to the B's, I have dimples on my behind bigger than that...This was supposed to be the big prize for going through this whole thing!? Really, I know that's weird, woo hoo, I'm going to live, but I get the "boobie" prize. :( No pun intended! I was fine when I left the office...disappointed, but no tears. Lisa swears she said "perky B's"..if she did, I didn't hear it.
I woke up Thursday and thought I was fine.... Not so much.. I got on the phone and called Jacquie, a survivor who has been through this whole process. She had given me a call to answer some questions about this hair growing machine thing. She was awesome and I kept her number. She gave me names of plastic surgeons, names of people to talk to at the Virginia Piper Center, and phone numbers for her friend that does the tattooing for most of the surgeons....yeah, weird, but don't ask if you don't know!... She talked to me for 30 minutes and gave me steps to take to do something different. I called the Piper center and talked to a cancer care nurse, Marlene, for another 30 minutes. She also was awesome....I started bawling again when she asked if I wanted to come in or just talk on the phone...I guess the phone was good! She listened while I talked about my oncologist and gave me some great direction, emailed me a calender with all the events, classes, and support groups that the Piper Center offers, and the name of a different plastic surgeon. I felt a million times better. As soon as I hung up, Lisa called with the name of a plastic surgeon. All three gave me the same name. Dr Gawley. I have an appointment with him next Thursday!
Friday morning Dr Meng's office called with good news! The chemo was working and we can go ahead with the surgery..... YIKES! I'm not sure of time frame. Monday, I'll talk to Dr. Freedman about scheduling and the second opinion I'm getting from Dr. Gawley. They'll have to work out when they will both be available for a surgery date. I'm hoping I don't have to start the second round of chemo until I recover from the surgery. I'm just starting to have some energy and and feel almost "normal". Well, as normal as I can looking like a favorite uncle.... my eyelashes are falling out...It's bothering me more than shaving my head??...Okay, back to the surgery-chemo thing. I think we have to wait until the stitches and drains are out and heal.....Then you can fill the exPanders while I'm doing the last four chemo's. It all sounds lovely, and I can't wait to be done! It feels like the world's moving on and I'm stuck with no control over it.....Not a good feeling for a control freak in denial!!!! So this week, everybody cross your fingers for better news than B's with scars!
The last couple weeks have flown by....thanks to my Aunt Mary, Aunt Doris and Uncle Dan. They came into town Friday night. It's awesome having some company. I think that's one of the worse parts.... not feeling good enough to get out of the house ...but not feeling bad enough to just be sitting at home alone. Saturday happened to be one of the days I was feeling really good.. I drug Aunt Mary and Thea Georgia all over town getting my errands done. Sunday I went to the Cardinals game with with Lisa and her family. What a game! We had a blast! I went straight from there to trick or treating and the Halloween Party. I think I was asleep before my head hit the pillow! Monday was my last chemo for this round..Yeah!.... Let's get this show on the road. Monday night we had an awesome evening...Greek Style...in other words...lots of food and family! It was awesome. Next week I've got everything scheduled to get going. Wed. is the plastic surgeon and the MRI, then the following Monday is Dr. Freedman, the surgeon, and Tuesday is Dr. Meng.....ready, set, go!!
So... to bring you up to date..I met with the plastic surgeon Dr. Freedman recommended. It was disastrous!! My first impression was not so good....She came into the room with her little cheetah print skirt that was shorter than her lab coat, support hose, 3 or 4 inch heels, and was in her late 50's or early 60's. Lisa is still asking me if I could even believe her lips,...I didn't see them... I never got past the Jersey girl blue eye shadow and cat eye shaped pupil.......but still, really wanted to like her. She asked a few questions, made no eye contact and kept flipping through my file, writing down notes, secret style.....you know, that's when you hold up a paper in front of what your writing and lean down so no one else ..I guess that would be me..can see what it is. Anyway, I told her that Dr Freedman said I probably will be able to keep my skin and nipple..I know...TMI... She looked shocked and said if I had the cancer YOU have I would not recommend it....but Dr Freedman will make the ultimate decision. I told her Dr. Meng said if I can keep my skin I wouldn't have to have "extenders"....She was totally confused and said "I don't know what your talking about". When I explained it's the thing you use to stretch the tissue and muscle...she said "OH...you mean exPanders". .... Really?.... The "T" was really that confusing??!..moving on... she explained what exPanders are and said but they only get so big...Hold the phone. Wait a minute...how big???? Without typing a book, let's just say she said "nothing like what you have". ?? What does that mean? I mean at the moment, since I'm gained weight and refuse to buy bigger clothes, I have a choice. A uni boob in a sports bra or the lovely 4 boob set in my too small D...I know I know, this is WAY to much info, but I tried writing it without it and it doesn't mean as much to me!!!! I crack myself up!!....So, after much coaxing and conversation, I came away with the fact that I am getting B's with scars....I thought I was at a plastic surgeons, wasn't counting on an Edward Scissorhands prophecy....according to Ms. Lips there's no discussion or any other option. When I asked if I will ever have a normal looking chest, she said, "Well, I could show you pictures, or better yet go on line"...What? I mean really? My GP forbids me from going on line. It seemed I was getting my PHD on line when I had hives. Evidently, a little information can be dangerous!! ...Back to the B's, I have dimples on my behind bigger than that...This was supposed to be the big prize for going through this whole thing!? Really, I know that's weird, woo hoo, I'm going to live, but I get the "boobie" prize. :( No pun intended! I was fine when I left the office...disappointed, but no tears. Lisa swears she said "perky B's"..if she did, I didn't hear it.
I woke up Thursday and thought I was fine.... Not so much.. I got on the phone and called Jacquie, a survivor who has been through this whole process. She had given me a call to answer some questions about this hair growing machine thing. She was awesome and I kept her number. She gave me names of plastic surgeons, names of people to talk to at the Virginia Piper Center, and phone numbers for her friend that does the tattooing for most of the surgeons....yeah, weird, but don't ask if you don't know!... She talked to me for 30 minutes and gave me steps to take to do something different. I called the Piper center and talked to a cancer care nurse, Marlene, for another 30 minutes. She also was awesome....I started bawling again when she asked if I wanted to come in or just talk on the phone...I guess the phone was good! She listened while I talked about my oncologist and gave me some great direction, emailed me a calender with all the events, classes, and support groups that the Piper Center offers, and the name of a different plastic surgeon. I felt a million times better. As soon as I hung up, Lisa called with the name of a plastic surgeon. All three gave me the same name. Dr Gawley. I have an appointment with him next Thursday!
Friday morning Dr Meng's office called with good news! The chemo was working and we can go ahead with the surgery..... YIKES! I'm not sure of time frame. Monday, I'll talk to Dr. Freedman about scheduling and the second opinion I'm getting from Dr. Gawley. They'll have to work out when they will both be available for a surgery date. I'm hoping I don't have to start the second round of chemo until I recover from the surgery. I'm just starting to have some energy and and feel almost "normal". Well, as normal as I can looking like a favorite uncle.... my eyelashes are falling out...It's bothering me more than shaving my head??...Okay, back to the surgery-chemo thing. I think we have to wait until the stitches and drains are out and heal.....Then you can fill the exPanders while I'm doing the last four chemo's. It all sounds lovely, and I can't wait to be done! It feels like the world's moving on and I'm stuck with no control over it.....Not a good feeling for a control freak in denial!!!! So this week, everybody cross your fingers for better news than B's with scars!
Thursday, October 28, 2010
I'm so Yucky!!!
I decided I should probably get back on track and update my blog.....the natives are getting restless!! Ha ha, not really, but people are starting to send flowers and sht!!! I'm still here, alive and kicking. Yep, I've been in a bit of a slacker lately, but really, I can hardly stand myself. Probably don't have much to say that would be printable... pissy x 10. Tuesday the Dr. told me how lucky I am....ya know,.... bite me!!
I had my 3rd chemo. It was the regular party, lots of good friends and family. We went to lunch after...just no margaritas this time. Every now and then I learn my lesson. This time I decided to do something different. Dr. Rubin had me come in for vitamin C IVs. Evidently vitamin C works way better than tequila....Who knew? I really didn't even get sick, of course then I did way to much and am exhausted, but it was way worth it! Alex, my nephew, was in town to play baseball in a Junior Showcase at the Peoria Sports Complex. I made 4 out of his 5 games.... the 1 game we won't talk about, because I was really upset I didn't make it...long, not very nice story! It was great to see Alex, the program said he's 6 ft....can you believe that... When did he grow up?? I didn't think he would understand if I still wanted to call him "punkin head" from the stands! I was so grateful I could go to the games, and he even took time to go to lunch with me everyday. Saturday, Andi, Athanasia, and Anna all came to the game, we even went to the Greek Festival at "Yiayia's" church for lunch. So that was my week.... get up, go to the game and lunch, come home, go to bed...repeat. It was awesome!!
So, like I said, Tuesday, I went back to the Dr. It was great news. The "lump" feels fleshy, which is a good thing. It means the chemo is working! Yeah! The plan is...Monday, Nov. 1st, chemo. Week of the 8th, MRI. If everything goes as planned I should have my new "girls" by Christmas! There are lots of little things I would like to talk about at some other time. At this point I would just like to say that everyone needs to take charge and be an active participant in their own health care.
Today I'm back on antibiotics with a fever. If everyone can send out a little prayer so I don't miss chemo on Monday, I would really appreciate it....I've seen what you all can do!! Thanks.
Oh.... and just a little FYI about the title....It's for Anna. When she was little and had a little trouble with her L's , her sisters and I were driving out to my house and Anna announced..."We're sssoooo YUCKY!!!" Yep, she meant Lucky, but what I wouldn't give for her to ask me to sit in my yap cuz she just yuvs me! But, we're all growing up, Anna's graduated from speech, and yes Dr. Meng.....I am lucky!
I had my 3rd chemo. It was the regular party, lots of good friends and family. We went to lunch after...just no margaritas this time. Every now and then I learn my lesson. This time I decided to do something different. Dr. Rubin had me come in for vitamin C IVs. Evidently vitamin C works way better than tequila....Who knew? I really didn't even get sick, of course then I did way to much and am exhausted, but it was way worth it! Alex, my nephew, was in town to play baseball in a Junior Showcase at the Peoria Sports Complex. I made 4 out of his 5 games.... the 1 game we won't talk about, because I was really upset I didn't make it...long, not very nice story! It was great to see Alex, the program said he's 6 ft....can you believe that... When did he grow up?? I didn't think he would understand if I still wanted to call him "punkin head" from the stands! I was so grateful I could go to the games, and he even took time to go to lunch with me everyday. Saturday, Andi, Athanasia, and Anna all came to the game, we even went to the Greek Festival at "Yiayia's" church for lunch. So that was my week.... get up, go to the game and lunch, come home, go to bed...repeat. It was awesome!!
So, like I said, Tuesday, I went back to the Dr. It was great news. The "lump" feels fleshy, which is a good thing. It means the chemo is working! Yeah! The plan is...Monday, Nov. 1st, chemo. Week of the 8th, MRI. If everything goes as planned I should have my new "girls" by Christmas! There are lots of little things I would like to talk about at some other time. At this point I would just like to say that everyone needs to take charge and be an active participant in their own health care.
Today I'm back on antibiotics with a fever. If everyone can send out a little prayer so I don't miss chemo on Monday, I would really appreciate it....I've seen what you all can do!! Thanks.
Oh.... and just a little FYI about the title....It's for Anna. When she was little and had a little trouble with her L's , her sisters and I were driving out to my house and Anna announced..."We're sssoooo YUCKY!!!" Yep, she meant Lucky, but what I wouldn't give for her to ask me to sit in my yap cuz she just yuvs me! But, we're all growing up, Anna's graduated from speech, and yes Dr. Meng.....I am lucky!
Saturday, October 9, 2010
Extreme, oh, and opposite Emotions
OMG I have to get out of bed!!! I've fallen right into my comfy self pity poof of a bed. I really don't want to talk to anybody or do anything....Yep, I just want to lay here...oh, and feel guilty about laying here, but not guilty enough to actually get up...What's up with that???? I keep thinking I need to get up and move...get some exercise...but, then I really don't feel good enough to get up, then I see my bald head in a shadow or a mirror and think wtf. What happened? ....

Monday I got my second chemo treatment. Only two more until the surgery. I can't wait to be done....It feels like the world keeps on going and I'm kinda stuck right where I'm at until I'm done. Okay, Okay...enough... Monday was fun. We had a regular chemo party! I had my "posse" with me. I was done in two and a half hours....Piece of cake!!
From there we went to the mall in search of wigs. What a trip...Mall hair x 10!! I'm still not sure about the lady working in the wig store... I mean really, if your selling the whole idea of people not being able to tell the difference, you should probably exemplify that particular quality! It kind of reminded me of the lady that worked at Garrett's growing up....really? you didn't notice your lips are a half inch below your lipstick line? Anyway, I'm not sure if she was really happy we were there or not.... I finally had to tell her what kind of shopper I am....I WILL have to try on every wig in here before I buy one...sorry, should we come back another day... or is that your job???? Okay, maybe I'm a little cranky! Teri took a picture of me with each wig on..... Maybe I should have looked at the pics before I bought one!!
Okay, I hope I'm amusing you, because this is humiliating!
Dolly Who???? Where??? Maybe after the surgery!
Maybe something a little different??

Pink & Green
be fab!!
It was a fun day! From there we went to lunch for margaritas...in the future, just so I know... Margaritas and chemo don't really mix!! Maybe that explains the last two days of not being able to eat and not getting out of bed... Oh and just so the Dr knows.... Chemo is to a weight loss program... maybe she just hasn't done it. The problem is ... you really don't care if your losing or not... you just want to feel good. Maybe feel good and be "normal". Normal is kinda hard with this thing sticking out just under your skin on your chest ...oh, and the whole bald thing. That's hard to fake for normal. I think I'm sounding a little pathetic so I'll quit writing for today....I think I'll go for a walk. It's beautiful out. I do want to say before I sign off, THANK YOU, THANK YOU, THANK YOU to all my awesome friends and family who have materialized out of the blue. I know that in day to day life I have always thought about you and thought I would be there if you ever needed me...I didn't realize how many of you were there for me. This whole process, however much it sucks, does make you stop and take notice of who and what is important in life. You all are taking the bite out of my trip. I don't know how I will ever be able to give enough back to make it up to all of you. I just want you to know you are soooo much appreciated! Thank you, thank you!
From there we went to the mall in search of wigs. What a trip...Mall hair x 10!! I'm still not sure about the lady working in the wig store... I mean really, if your selling the whole idea of people not being able to tell the difference, you should probably exemplify that particular quality! It kind of reminded me of the lady that worked at Garrett's growing up....really? you didn't notice your lips are a half inch below your lipstick line? Anyway, I'm not sure if she was really happy we were there or not.... I finally had to tell her what kind of shopper I am....I WILL have to try on every wig in here before I buy one...sorry, should we come back another day... or is that your job???? Okay, maybe I'm a little cranky! Teri took a picture of me with each wig on..... Maybe I should have looked at the pics before I bought one!!
| Throw on a wig to throw your "hair " in a pony?? |
| Whose nose is that? |
| to red to many chins? |
| What did I say I did?? |
| how does blond = horse face? |
Dolly Who???? Where??? Maybe after the surgery!
Maybe something a little different??
| Perfect!! |
Pink & Green
be fab!!
It was a fun day! From there we went to lunch for margaritas...in the future, just so I know... Margaritas and chemo don't really mix!! Maybe that explains the last two days of not being able to eat and not getting out of bed... Oh and just so the Dr knows.... Chemo is to a weight loss program... maybe she just hasn't done it. The problem is ... you really don't care if your losing or not... you just want to feel good. Maybe feel good and be "normal". Normal is kinda hard with this thing sticking out just under your skin on your chest ...oh, and the whole bald thing. That's hard to fake for normal. I think I'm sounding a little pathetic so I'll quit writing for today....I think I'll go for a walk. It's beautiful out. I do want to say before I sign off, THANK YOU, THANK YOU, THANK YOU to all my awesome friends and family who have materialized out of the blue. I know that in day to day life I have always thought about you and thought I would be there if you ever needed me...I didn't realize how many of you were there for me. This whole process, however much it sucks, does make you stop and take notice of who and what is important in life. You all are taking the bite out of my trip. I don't know how I will ever be able to give enough back to make it up to all of you. I just want you to know you are soooo much appreciated! Thank you, thank you!
Friday, October 1, 2010
Emergency Head Shaving Party!
The day started with with the shower water not draining...OMG... there was a baseball size glob of hair that didn't make it down the drain, which to me meant, I'm sure lots did,.... but then maybe now I got all of the loose hair and the rest will be secure. Whatever! If I ran my hand through it, I would come up with even more hair than yesterday. It was one of the few days I had to leave the house, I'm so grateful that I can stay home when I need to. I then had to figure out what in the heck I could wear that would go with a bandanna and baseball cap. I was going to lunch with my cousin Teri and her friends at the Enchantment Resort. It is amazingly beautiful there....You know, before this pesky cancer thing I probably wouldn't have taken the time...and boy did I hear about it....to drive 1 1/2 hrs to just go to lunch then turn around and drive back. It was sssoooo worth it. Okay, wait, back up, I've driven to Prescott (1hr drive) for a 17 second horse race got my picture taken, got back in the car and went back to work! Anyway, I had to try to keep my hair "contained". Nobody wants to have lunch with someone that would get hair in their meal! I was shedding like an Alaskan Malamute in Arizona. I was afraid I was going to take my bandanna off and all of my hair would be in it... scary! I actually looked, then I called for the emergency head shaving party. I had decided that I wanted "my kids" to cut my hair for me. I thought it would be better for them so they just didn't show up and I was bald, AND they are incredibly fun to have around! I had talked about it with their real mom, Andi, and it was the plan. I called Andi. This can't wait till next week, there might not be any hair left by then. They were coming at 7:00pm. That, in itself, was no small feat. We're talking three very active girls. Their schedules are packed; between homework, cross fit, cheer, singing, softball, Greek dance, friends and, oh, just being kids they have 0 time. They were rounded up and all at my house at 7:00 with Thea Georgia in tow. Lloyd came over with clippers, and Teri showed up with a camera...great? I ordered pizza, I didn't really know what to serve at a head shaving party ...I ate my gluten free meal...what will power!..then it was time for the main event. Yikes! First, we had to decide who was going first... there was some discussion about who wanted to do what style...I was like a human Chrissy doll. Do they even make those any more? I'm sure now it's some computer generated makeover!... At first, they each took a turn cutting rather timidly, Anna was holding my hand for support. It didn't take long for all three to be working at the same time.. I went from Rhianna to Brittney in less than an hour! And, okay, I can be an idiot and still say some of the stupidest things on the planet. Never say, " Be careful with those scissors, if I get cut I could die!...omg..I'm kidding, I'm kidding". Evidently, NOT funny. I keep forgetting that everyone doesn't know that I'm going to be okay. Other than that, we had a blast..in a weird sort of way. Lots of love and laughter. Thanks girls! I can't imagine watching it come out piece by piece, or sitting in a salon or barber shop watching someone shave it off. You did an awesome job and made me laugh! Next official party is the Wig Hunt on Monday!


Wednesday, September 29, 2010
More Bugs, Less Hair
Today I started feeling guilty for not being at work. I'm thinking that may be one of the lessons I need to learn....uh, right.....I need to learn how to take time off and not feel guilty....that really may take some time... I'm willing to buck up and work on it!! I must have thought if I was doing something productive there shouldn't be anything to feel guilty for? I decided to clean out my pantry. I have those little flour bugs..I don't even keep food in there any more but they are still there. Anyway, this turned into a huge project. I took everything out and ran to Target to get some Clorox, rubber gloves and a mask. Isn't that ridiculous! I had to wear rubber gloves up to my biceps and a mask to clean out cabinets? It did make me rethinking the whole mask to the grocery store thing. I don't know if I happen to have a particularly high water content in my breath or what , but how do you breathe through the condensation that little mask holds, I thought I was going to drown!....But do you know what the big lesson for the day was?? Never, ever do anything that involves little bugs when your hair is falling out...OMG.. every time a little hair fell, which is quite often, I thought bugs were crawling all over me. I still have the willies. It was exhausting... actually, I have to finish in the morning and put everything back tomorrow. I have awesome friends that keep offering to help me...Whatever I need? That's so nice..I do really appreciate it. Problem is, I feel great, (right now). It would just be wrong if they cleaned out my garage...right???!! Who knows what I'll find in there.
Tuesday, September 28, 2010
Good Blood, Bad Hair.
WooHoo! My blood work from yesterday was normal...Ha.. That's the body I remember! Volcanic eruptions cant' keep us down!! It's amazing what the right nutrition can do for you. I've decided that my personal bipolar health care routine needs some consistency. I'm always either all in or on the couch eating bon bons. . Last week I concurred the gluten free diet. Of course, there wasn't much conquering going on, I mean, it's really hard to eat the delicious prepared meals? Oh well, whatever it takes, I did stick to it and I think that's why I feel great! Today I started working out again. It felt good. I found myself thinking about how easy getting ready will be with a bald head! I postponed my head shaving party until next week. I thought I'd have to have another round of chemo before it started falling out. I thought wrong. I'm thinking we should push it up a little...by next week I'm sure I'll be supporting a Trump do. Last night the hair on the top of my head hurt...you know, like I just took corn rows out that had been in for two or three weeks... Corn rows? Is it still called that? It's that hair do at any island or beach resort that screams "tourist" on most anyone over 16.... If you've never had corn rows, or , I guess cancer, I know you're thinking how can your hair hurt? It's like it got stuck in one position and it's to stiff to move, kinda like my knees when I sit "Indian style" for a couple hours after 40. Yeah, yeah a couple hours is a huge exaggeration, make that two minutes, if I'm feeling especially limber! Anyway, when I rubbed my head I came up with a hand full of hair. It's a weird feeling. and of course, considering my neurotic tendencies, I HAD to keep checking it. It's amazing I still have any left tonight. All day I would pull it just to see if it still was coming out. I don't know, wouldn't most people be satisfied after, say, four or five clumps. I think I checked every 1/2 hour all day. Although, wouldn't you know,.... while I was driving, I did notice it doesn't seem to have the same effect on my ZZ Top beard or Pancho Villa mustache. That's just friggin awesome news....
Monday, September 27, 2010
It's the Little Things
My immune system is definitely off my bff list right now. The tiniest thing that in every day life I wouldn't give a ...wait not a second thought, not even a first thought about, creates unbelievable chaos. It started on Wednesday in Sedona. During the day I noticed a small bug, spider , what ever bite on my stomach. No big deal. It was really tender to touch, so I didn't touch it! It turned out to be obnoxious by bedtime. It really started to hurt, and somehow, it was the size of a cupcake... Wow, that whole gluten free diet thing is working...cupcake, really? When I can equate that icky growth to my favorite food group, I just might see slenderness in my future!!... Considering I now want to wear a hazmat suit to the grocery store, you can imagine how I might feel about the emergency room. Why do things always get worse after 5:00 pm? I had just gotten an email from a friend casting her vote to shave my head. She had a friend that did it after med school and SHE said it was quite liberating. My friend did add that this lady just got back from a 3 year sabbatical which consisted of a silent Buddhist meditation, volunteering in Africa and relaxing in Singapore. I'm not sure about the silent part.. Anyway, I remembered that this friend had had a spider bite on her finger AND she's a Dr., Sweet!! I called right away...I may turn into her biggest nightmare the next few months!! I was already on antibiotics so I was assured I would live until morning when I could call the oncologist. Fast forward to today, Monday, blood drawing day. I decided to ask the PA about the volcano on my tummy. That stupid little bite is delaying my chemo for a week. Oh, and FYI there's no deals to be made with oncologists. Mine really doesn't care that I now have to postpone my head shaving party to next week... I mean really, it's not like you can have two head shaving parties. Anyone have any spare white blood cells?!
Sunday, September 26, 2010
The End of the Week and my Sanity?
I haven't written for a couple days so this might get a little lengthy. There are these little things bouncing around my brain! None of them have anything in common, but we'll just see where we end up. I ended up coming home. I came back from Sedona Friday instead of Sunday. I had a certifiable, crazy lady break down. The day did start off a little crazy, I had to change hotels, then I didn't, then I did, then I didn't, then I did. So after I packed up...why did I bring up all this stuff here? I've worn two pairs of pajamas and my robe.....I went to lunch with my mom's friend Shirley and her friend.....Oh crap...I forgot her name.. she was a super nice lady...We had a great time or at least I had a great time. Yes, my mom even arranged for me to have company... I told them probably WAY more than they wanted to hear about me. I guess I had a little cabin fever. Anyway, while we were in line at Wild Flower a couple handed me an envelope and said it was for a free breakfast or lunch. I was either looking like I needed some help or had an amazing aura.....uh, you know, we were in Sedona. I said Thank You, and started to ask what it was for and they were gone. It was a gift card for $20. Where the "To:, From:" section was they drew a heart. I wanted to yell after them "I'll pay it forward"... I get it! Oh, and I'm choosing to think I had an amazing aura going on, not that I looked homeless. Anyway, as for the rest of the day, let's just say if you're in business, or actually, in life in general, don't say you can do something if you can't, and especially don't do it five times in one day to the same person. Even people who are being nice have a breaking point. I guess the saying "the squeaky wheel gets the grease" exists for a reason. I blew, used some inexcusable language, and went home. My loss. I did get some desperately needed sorting and cleaning done with the extra time at home, so all is not a loss. Most of you know what a neurotic organizer I am...you remember when I couldn't wait for "Organized Living" to open so they could organize my life...turned out that wasn't what they did, but now I have a container for everything. ..Plastic shoe boxes with Polaroid pictures of the shoes in them. Enough said. Now my Dr. bills, Prescription bills, insurance statements, Dr. instructions, etc. are all nice and tidy in pretty Ed Hardy notebooks. By the way, the irony that Ed Hardy and my cancer are both on their way out is not lost on me. I have so much more to tell you, but I'm finally sleepy and going to bed. Tomorrow you can look forward to the saga of the gargantuan dilemma brought on by a bite...not sure what kind of bite, maybe a spider, maybe a gnat, but what a problem!!
Thursday, September 23, 2010
Help! I'm Thinking of Shaving My Head...
Another beautiful day in Sedona! I actually bathed and was walking around the grounds for at least 30 minutes....okay, I was looking for an Ice Machine, but I did get some exercise!! I sat outside and read; I feel totally human and almost healthy! Since I know I'm going to live again, I've been thinking about my hair. I asked the Dr. three times during my last 15 minute appointment if she was sure I was going to lose it. Was I going to lose it all, or will it just be super super thin? What's the deal? This is a very valid question, even though she has told me I was going to lose it probably three times before. The thing is... it seems that in this whole realm of cancerdom, nothing is to specific. Am I going feel the same after the next round of chemo? Is the first chemo treatment the worst because of the unknown? Will we be able to do surgery after the first four treatments? Since my bones didn't hurt after this shot, does that mean they probably won't? Is my white count always going to be low?....Anyway, you get the idea.... The answer is ALWAYS "everybody reacts differently" Why then are we ssssooooo sure I'm going to lose my hair? From what I've heard from friends, family, friends of friends, friends of family's friends.....your know, everyone has a couple stories....waking up to find clumps of hair on your pillow, or handfuls of hair come out when your washing it, is traumatic. Given all that, I'm thinking of going ahead and shaving my head. What do you think?? That makes it my decision...kinda. I don't know, in some weird way, it makes it seem .....like I have some kind of control? Is that it? It wouldn't be the first stupid decision I've ever made. Ask my Mom! I have to make the decision pretty quick, chemo is Tuesday. All I do know, is that if I do shave it and it doesn't fall out.....I'm going to be pissed!!!
A Shout out to all the Commentors
Before now, I really didn't know what a blog was. I don't know how to twitter and I'm kind of a face book voyeur. I rarely post a comment for the day....Now, I'm popping up like a farmville conglomerate. Hope I'm not being annoying. This is kinda therapeutic for me, it makes me stop and laugh at my behavior and sometimes just take the sting out of the situation. It's a great venue for some friends and family to "stay in the loop". I really appreciate your comments, thoughts, and prayers. It might seem trivial to you to take the time to type a couple lines but it truly lifts my spirit. Anyway, I just wanted to take the time to let you all know how grateful I am for you. Thank you, Thank you, Thank you!
Wednesday, September 22, 2010
Don't Laugh at the Germ Phobic with a Mask, It might be ME!
OMG. how much can I really sleep. I woke up at 7:30, ate breakfast, and decided it was way to early to actually get up for the day, so I went back to bed. After all, I was up like every hour til my fever broke about 2am. It's legal to still be in bed. Wow, really? I'm justifying staying in bed to myself. This lesson might take some time. Woke up again about 12:30, ate lunch, hmm, still tired....I finally got out of bed, washed my face, brushed my teeth, and ventured out into the world. The only reason I actually got out of bed is because my breakfast will be way better with some milk, make that almond milk, that's what's allowed at the moment. I really needed a couple of things from the store and of course forgot all my chargers at home. Mission accomplished, I was home by 3:45, what? I thought it had to be close to 6 or 7, I mean I just got up at 2 and I feel like I've climbed Pikes Peak?? When you don't feel great and know how compromised your immune system is the grocery store is a VERY scary place. After one trip, I'm definitely considering a mask! Yes, me. I've laughed at them and think every baby should suck on someones nasty toe under the table at a family gathering just to build their immune system. Hmm, maybe there's a reason God didn't bless me with my own kids. I've never been a germ phobic, but I really didn't want to touch that grocery cart. There was an old man in produce that kept sneezing, the actual produce employee was sniffing, and OMG I just went to Staples to try to get a charger, I'm sure all the back to school germs were running amok. I got the only cashier with a cold she kept coughing, granted, she covered her mouth then touched every single item in my cart when she scanned them. I was sure I was going to die before I got to the car. Everything I bought was contaminated...except for the can of Lysol....I went to a different cashier when I went back in for it. To sum it up, I swear the nice shopping music turned into the theme from Psyco, and everywhere I looked noses were running, people were sneezing, coughing and some looked feverish. Next time I'm wearing a HazMat suit! No wonder I was exhausted when I got back! I slept the rest of the day. Ate dinner, and my plans....yep. Back to bed.
My Body isn't Cooperating??
Tuesday, Sept. something
Today was my first check up with Dr. Meng, the oncologist. I had been feeling awesome. The last two or three days had been mentally stressful and I was a little tired. I knew all my blood work etc. was going to be good!! I'm not bragging, but really, my life has been and is pretty great. It hasn't always been a cake walk, but most of the people who know me believe I can have fun in a cardboard box.... I'm not really sure if that's a compliment and probably the reason I dye my hair blond, but, it works for me! Anyway, back to the appointment. My white count was super low, I have a low grade fever, and oh ya, now that I'm thinking of it, my throat kinda hurts? What? My body has always done anything I want it to....well, except stay effortlessly skinny.. At the gym, everybody always said how strong I am....which is great, but at the time I would have opted for skinny! Not now. Wow, really, how many lessons do I still need to learn?? I don't know if I already "blogged" this.. if I did, feel free to skip ahead...but I truly believe that my Guardian Angel, I like to call Burt, or God has sent so many people into my life the last 3 or 4 years that have tried to make me focus on my life, where I want to go, and what I want to do. Me, I kept saying yeah, yeah, right, right, as soon as I get this in order or figure out that for them... So, Burt, because, really,.. I'm not going to say God gave me caner, even though in a month and a half I've grown more than ever before and found my voice..... Okay, where was I, focus... well actually, I'll just get this out of the way. I usually speak in asides... I'll veer off on some totally unrelated subject that eventually will actually relate back to the original topic in the end.... friends have said..."wait for it...wait for it..AAAwwe.. no way I thought that was coming back!" Anyway, so Burt has finally said "Really? ... This is what it's going to take?" For some of us, I guess it takes a little longer. All I'm saying, is pay attention! My plans were to head to Sedona after my appointment and chill for a week. You know, I'm just following Dr. Rubin's orders! My Mom graciously gave me her timeshare week and picked up my food at Nourish. Dr. Meng said go. Okay, what did I just say? Pay Attention!! What? When I got here, I had a 100 degree temp, looked like dead man walking, and could barely lift myself out of the car. I paid the bellman $50 to unload my car, put my food in the fridge and close all the black out shades. What an idiot I can be! I ate my yummy, not joking... really is yummy gluten free...blah, blah, blah food so I could take my antibiotics the super smart Dr Meng gave me and went to sleep. I get it... I'm resting!
Today was my first check up with Dr. Meng, the oncologist. I had been feeling awesome. The last two or three days had been mentally stressful and I was a little tired. I knew all my blood work etc. was going to be good!! I'm not bragging, but really, my life has been and is pretty great. It hasn't always been a cake walk, but most of the people who know me believe I can have fun in a cardboard box.... I'm not really sure if that's a compliment and probably the reason I dye my hair blond, but, it works for me! Anyway, back to the appointment. My white count was super low, I have a low grade fever, and oh ya, now that I'm thinking of it, my throat kinda hurts? What? My body has always done anything I want it to....well, except stay effortlessly skinny.. At the gym, everybody always said how strong I am....which is great, but at the time I would have opted for skinny! Not now. Wow, really, how many lessons do I still need to learn?? I don't know if I already "blogged" this.. if I did, feel free to skip ahead...but I truly believe that my Guardian Angel, I like to call Burt, or God has sent so many people into my life the last 3 or 4 years that have tried to make me focus on my life, where I want to go, and what I want to do. Me, I kept saying yeah, yeah, right, right, as soon as I get this in order or figure out that for them... So, Burt, because, really,.. I'm not going to say God gave me caner, even though in a month and a half I've grown more than ever before and found my voice..... Okay, where was I, focus... well actually, I'll just get this out of the way. I usually speak in asides... I'll veer off on some totally unrelated subject that eventually will actually relate back to the original topic in the end.... friends have said..."wait for it...wait for it..AAAwwe.. no way I thought that was coming back!" Anyway, so Burt has finally said "Really? ... This is what it's going to take?" For some of us, I guess it takes a little longer. All I'm saying, is pay attention! My plans were to head to Sedona after my appointment and chill for a week. You know, I'm just following Dr. Rubin's orders! My Mom graciously gave me her timeshare week and picked up my food at Nourish. Dr. Meng said go. Okay, what did I just say? Pay Attention!! What? When I got here, I had a 100 degree temp, looked like dead man walking, and could barely lift myself out of the car. I paid the bellman $50 to unload my car, put my food in the fridge and close all the black out shades. What an idiot I can be! I ate my yummy, not joking... really is yummy gluten free...blah, blah, blah food so I could take my antibiotics the super smart Dr Meng gave me and went to sleep. I get it... I'm resting!
Monday, September 20, 2010
Is That Drool on my Chin?
Sunday, September 19
Holy Cow! Okay, I have to admit it .... chemo kinda kicks your ass! I'm pretty tough, but run like a baby when I'm nauseous. Go figure..that's the big one here. I have to be nauseous. I'll take or do anything not to be nauseous, unfortunately, that explains the lost week!! I pretty much slept, I don't know, slept or just stared into space, but you definitely could find drool on my chin if you looked! I probably over medicated myself the first two days after chemo, but really...., I wasn't going to run a marathon and my mom wasn't going to let me get out of bed anyway!!
Last time I "blogged" was right after chemo. I felt good that day and the next. The shot really stings, but other than that no real complaints. It's a weird feeling, it's like your waiting to feel really bad, not that you have to, but you know your going to. I had this battle going on in my head. On one hand, I know I'm going to be the person that it doesn't effect. You remember, the whole super hero wanna be thing....single handily crushed chemo with a glancing blow....Whatever! On the other hand, well, let's make that hand reality.....I've just had a boatload of poison injected into my veins, chances are, I'm probably going to feel it. I did.
Week one is done. I'm glad it's over, but I definitely need to do things differently. My mom and I met with a naturopathic oncologist, Dr Rubin, on Friday and have a plan. Food seems to be the biggest problem. Everyone wants you to eat, but I'm definitely not hungry and nothing tastes good. Actually, cold mashed potatoes are delicious! It's really not important as to how one actually figures out that cold mashed potatoes are good, but trust me they are. Anything that comes out of a can tastes like worms, other than that it's all a crap shoot. Everyone reacts differently. Dr. Rubin recommended Kirstin at Nourish to help with a meal plan, gave me some supplements and recommendations to help my body deal with the chemo, nausea etc. And now the reason I Love, Love Dr Rubin is that he recommended I take 3 or 4 weeks off to get my food and exercise program together! Sweet! Okay, really he just said 3 weeks. That's what I'm doing. Lloyd has been awesome about the time off, my mom has been here everyday trying to figure out what to cook and how to help. Lisa has gone to all my appointments, Terri stops by whenever she can, and Denise flew in from Colorado. The thing is, there's no instruction manual. There are great books out there. My favorite is "My Crazy Sexy Cancer", but we all have to figure out how we're going to deal. I apologize to everyone I've been short with or down right mean to. We're all doing it right...It's all just different!
Holy Cow! Okay, I have to admit it .... chemo kinda kicks your ass! I'm pretty tough, but run like a baby when I'm nauseous. Go figure..that's the big one here. I have to be nauseous. I'll take or do anything not to be nauseous, unfortunately, that explains the lost week!! I pretty much slept, I don't know, slept or just stared into space, but you definitely could find drool on my chin if you looked! I probably over medicated myself the first two days after chemo, but really...., I wasn't going to run a marathon and my mom wasn't going to let me get out of bed anyway!!
Last time I "blogged" was right after chemo. I felt good that day and the next. The shot really stings, but other than that no real complaints. It's a weird feeling, it's like your waiting to feel really bad, not that you have to, but you know your going to. I had this battle going on in my head. On one hand, I know I'm going to be the person that it doesn't effect. You remember, the whole super hero wanna be thing....single handily crushed chemo with a glancing blow....Whatever! On the other hand, well, let's make that hand reality.....I've just had a boatload of poison injected into my veins, chances are, I'm probably going to feel it. I did.
Week one is done. I'm glad it's over, but I definitely need to do things differently. My mom and I met with a naturopathic oncologist, Dr Rubin, on Friday and have a plan. Food seems to be the biggest problem. Everyone wants you to eat, but I'm definitely not hungry and nothing tastes good. Actually, cold mashed potatoes are delicious! It's really not important as to how one actually figures out that cold mashed potatoes are good, but trust me they are. Anything that comes out of a can tastes like worms, other than that it's all a crap shoot. Everyone reacts differently. Dr. Rubin recommended Kirstin at Nourish to help with a meal plan, gave me some supplements and recommendations to help my body deal with the chemo, nausea etc. And now the reason I Love, Love Dr Rubin is that he recommended I take 3 or 4 weeks off to get my food and exercise program together! Sweet! Okay, really he just said 3 weeks. That's what I'm doing. Lloyd has been awesome about the time off, my mom has been here everyday trying to figure out what to cook and how to help. Lisa has gone to all my appointments, Terri stops by whenever she can, and Denise flew in from Colorado. The thing is, there's no instruction manual. There are great books out there. My favorite is "My Crazy Sexy Cancer", but we all have to figure out how we're going to deal. I apologize to everyone I've been short with or down right mean to. We're all doing it right...It's all just different!
Tuesday, September 14, 2010
First Chemo Treatment
This is kinda like a weird social club. My mom and I got here with all my "stuff". I had to bring three or four books, anyone who's shopped with me knows how I make decisions...I'll just take them all....right? My laptop, G2, crackers, phone, my pillow and blankey, I don't know, pretty much more than I can carry, according to my mom and more than I can take next time.... Yesterday they told us I'm not supposed to lift over 2lbs. for 2 weeks. My mom just knew my port was going to pop out of my chest carrying my purse!
So basically, you sit in the office with other people getting chemo kinda behind a half wall looking out the window at a parking lot. It's like lazy boy nirvana. You sit in this big comfy chair, you have a TV and can basically can do whatever you want. I didn't have to have a TV volume war with the cute little old man in the corner because I was to busy with my support team. My entourage was fun! My mom , Terri, Lisa, and Aunt Georgia all came and went during the 4 hours I was there. Thank you ladies, you make me laugh and that's the best medicine I had all day! They told me to plan on 6 hours ( see comments above...I was definitely ready!) I feel fine. Still kinda tired, but I think that my body is just getting used to the port thingy. OH ya, and fighting cancer. The only thing that is kinda freaky is when they put the chemo in your iv, the nurse has these big rubber gloves on so it doesn't accidentally touch her...what? Oh, and how did I forget the best part? They have shopping there!!!
Tomorrow I go for a shot that starts with an "N" and it helps white blood cells. I'll let you know how it goes!
So basically, you sit in the office with other people getting chemo kinda behind a half wall looking out the window at a parking lot. It's like lazy boy nirvana. You sit in this big comfy chair, you have a TV and can basically can do whatever you want. I didn't have to have a TV volume war with the cute little old man in the corner because I was to busy with my support team. My entourage was fun! My mom , Terri, Lisa, and Aunt Georgia all came and went during the 4 hours I was there. Thank you ladies, you make me laugh and that's the best medicine I had all day! They told me to plan on 6 hours ( see comments above...I was definitely ready!) I feel fine. Still kinda tired, but I think that my body is just getting used to the port thingy. OH ya, and fighting cancer. The only thing that is kinda freaky is when they put the chemo in your iv, the nurse has these big rubber gloves on so it doesn't accidentally touch her...what? Oh, and how did I forget the best part? They have shopping there!!!
Tomorrow I go for a shot that starts with an "N" and it helps white blood cells. I'll let you know how it goes!
Monday, September 13, 2010
Port "Installation"
I asked, it's not installation, it's procedure... I got a Power Port. I always knew I was destined to be a Super Hero!!? The PA told me what she was going to do and that you would be able to see where the tube goes over the collar bone " because you don't have any fat over that bone". Great, that and my ear lobes are the only places on my body that fat is not in abundance. Anyway, the whole " procedure" was pretty easy, actually I felt awesome while it was in process. The Dr. even let me choose the music. Wait, I asked for Pink and got Snora Jones??? Wow, those drugs were amazing. After the surgery, not so much. I got that clammy, omg, I'm going to throw up thing going on. My mom got me home and into bed. The migraine I had woke up with was now raging. FYI, Migraines must not like Snora either, because that was the only part of the morning it disappeared. I slept all afternoon while my mom made me chicken soup, got my prescriptions, went grocery shopping, and did my laundry. You gotta love moms! Thanks for all the calls , texts, visits and comments on this blog! They are all much appreciated and I feel the luv!! Oh and Loretta, I'm not buying the time line on that hat!!
Sunday, September 12, 2010
Where Did Those Two Weeks Go????
September 12, 2010
So it's Sunday, the day before I get my port, and two days before I get my first chemo treatment. This was all moving sssoooo slow and now it's here. I'm kinda freaking out. I think I need to be getting my house cleaned up, doing something to my back yard, and I'm just laying here watching football and movies.
When Lisa and I left the surgeons we went and ran errands. I had to get a juicer and a cancer survivor ring.... yes I did....I blinged my cancer. It's like this process wasn't moving but sped by?? I still don't know how to use my juicer, I'm sure all the fruit and vegetables are rotten, and my ring isn't ready yet. The next week I was poked and prodded so many times, by Saturday I felt like a glowing pin cushion!! Although I must say the most relaxing parts of the week was laying perfectly still in those machines...Is something just wrong about that? Tuesday was the MRI, Wednseday...blood work, Thursday... Bone Scan, Friday.....CT Scan, then wait. Finally, the surgeon calls. Looks like a better idea to do chemo first. I made an appointment with the onocologist and had one more appointment with the surgeon. I'm borderline between Stage 1 and 2. The bone scan and ct scan are clear...Yeah!.. The MRI showed that it is larger than we originally thought, and is attaching or getting very close to the chest cavity. The plan is to confine and shrink it before we get it out. Evidently a cancer cell has barely visible kinda tennecle looking things and since we want to get it all and the lymph nodes are involved we're doing the chemo first. The plan is to take less lymph nodes and it not spread it. It is grade 3, which means it is invasive and fast growing. Obviously you would rather be a grade one, but then I always have been an over achiever. The good thing about grade 3 is that it responds well to chemo.
Basically this is the plan.
Friday: Pet Scan
Monday: Install .. wait, is that a construction term or did they say that?.. Anyway, I get the port..I'm dereading that the most. I've been kneading that spot right under my colar bone all week!
Tuesday: Chemo.
The Chemo will be Adriamycin and Cytoxin, every 2 weeks for 4 treatments.
Then another MRI to see if we can do the surgery. I hoping so....I know I'm being active and treating it but I want it OUT!...oh..and the new boobs. :) Would that make me bald and buxom?! The oncologist already burst my bubble, evidently, chemo is not a weight loss plan...Damn.. I've tried everything else!
Then comes Taxotere (chemo) and Herceptin (an antibody against Her2). That combo very 3 weeks for 4 doses. The Herceptin continues for a year.
I'll lose my hair after the 2nd dose...please send hats!! My "mall hair" isn't going to cut it!
I'm super comfortable with my team. My mom still wants a second opinion. I'm not really sure why I just don't want to. I trust and like the people I have. I'm going to a natruopathic oncologist on Friday. I've heard great things about him too. It should make the chemo a lot easier to take. I'm planning on working and living as usual...maybe taking more time for myself and not over thinking everything! Anyone have any suggestions about a second opinion......
Tomorrow I'll let you know how it feels to be supporting a port!
So it's Sunday, the day before I get my port, and two days before I get my first chemo treatment. This was all moving sssoooo slow and now it's here. I'm kinda freaking out. I think I need to be getting my house cleaned up, doing something to my back yard, and I'm just laying here watching football and movies.
When Lisa and I left the surgeons we went and ran errands. I had to get a juicer and a cancer survivor ring.... yes I did....I blinged my cancer. It's like this process wasn't moving but sped by?? I still don't know how to use my juicer, I'm sure all the fruit and vegetables are rotten, and my ring isn't ready yet. The next week I was poked and prodded so many times, by Saturday I felt like a glowing pin cushion!! Although I must say the most relaxing parts of the week was laying perfectly still in those machines...Is something just wrong about that? Tuesday was the MRI, Wednseday...blood work, Thursday... Bone Scan, Friday.....CT Scan, then wait. Finally, the surgeon calls. Looks like a better idea to do chemo first. I made an appointment with the onocologist and had one more appointment with the surgeon. I'm borderline between Stage 1 and 2. The bone scan and ct scan are clear...Yeah!.. The MRI showed that it is larger than we originally thought, and is attaching or getting very close to the chest cavity. The plan is to confine and shrink it before we get it out. Evidently a cancer cell has barely visible kinda tennecle looking things and since we want to get it all and the lymph nodes are involved we're doing the chemo first. The plan is to take less lymph nodes and it not spread it. It is grade 3, which means it is invasive and fast growing. Obviously you would rather be a grade one, but then I always have been an over achiever. The good thing about grade 3 is that it responds well to chemo.
Basically this is the plan.
Friday: Pet Scan
Monday: Install .. wait, is that a construction term or did they say that?.. Anyway, I get the port..I'm dereading that the most. I've been kneading that spot right under my colar bone all week!
Tuesday: Chemo.
The Chemo will be Adriamycin and Cytoxin, every 2 weeks for 4 treatments.
Then another MRI to see if we can do the surgery. I hoping so....I know I'm being active and treating it but I want it OUT!...oh..and the new boobs. :) Would that make me bald and buxom?! The oncologist already burst my bubble, evidently, chemo is not a weight loss plan...Damn.. I've tried everything else!
Then comes Taxotere (chemo) and Herceptin (an antibody against Her2). That combo very 3 weeks for 4 doses. The Herceptin continues for a year.
I'll lose my hair after the 2nd dose...please send hats!! My "mall hair" isn't going to cut it!
I'm super comfortable with my team. My mom still wants a second opinion. I'm not really sure why I just don't want to. I trust and like the people I have. I'm going to a natruopathic oncologist on Friday. I've heard great things about him too. It should make the chemo a lot easier to take. I'm planning on working and living as usual...maybe taking more time for myself and not over thinking everything! Anyone have any suggestions about a second opinion......
Tomorrow I'll let you know how it feels to be supporting a port!
It's Official
August 27, 2010
I think people think I have lost my mind. I've been wallowing in depression for the last six months to a year, I get cancer and bam, I seem practically giddy compared to what I was.. WTF is that about?? Granted it comes and goes, but for the most part I feel better. Sure, it sucks that I have cancer, but I just need to get rid of it and move on. I've always been the person who lives in the moment, loves life and fun!! Time to get back to it! Lisa went with me to the surgeon. We loved the surgeon. I'm not sure what people were talking about. He's doesn't sugar coat anything, listens, answers questions, and you don't feel rushed or like a number. He told me as much as we know right now, I have invasive ductile carcinoma. It is grade 3. The lymph nodes are suspicious. I am a candidate for all three available surgeries, chemo, and probably not radiation, unless I opt for a partial mastectomy, which means no new matching boobs...no thanks!...oh and greater risk of coming back. To know more we need more tests. Everyone I have met in this field, including other surgeons have told me he is an excellent surgeon. That's what I need, I'm not looking to marry him, I just want him to get this shit out of me! I'm good, throwing the other numbers away.
I think people think I have lost my mind. I've been wallowing in depression for the last six months to a year, I get cancer and bam, I seem practically giddy compared to what I was.. WTF is that about?? Granted it comes and goes, but for the most part I feel better. Sure, it sucks that I have cancer, but I just need to get rid of it and move on. I've always been the person who lives in the moment, loves life and fun!! Time to get back to it! Lisa went with me to the surgeon. We loved the surgeon. I'm not sure what people were talking about. He's doesn't sugar coat anything, listens, answers questions, and you don't feel rushed or like a number. He told me as much as we know right now, I have invasive ductile carcinoma. It is grade 3. The lymph nodes are suspicious. I am a candidate for all three available surgeries, chemo, and probably not radiation, unless I opt for a partial mastectomy, which means no new matching boobs...no thanks!...oh and greater risk of coming back. To know more we need more tests. Everyone I have met in this field, including other surgeons have told me he is an excellent surgeon. That's what I need, I'm not looking to marry him, I just want him to get this shit out of me! I'm good, throwing the other numbers away.
Saturday, September 11, 2010
Biopsy Day
August 24, 2010
Just a note for anyone going with someone getting a biopsy. You are going for support. A person with a numb boob can still operate a vehicle. I know it's hard to believe, but trust me on this one. This trip is about the person getting the biopsy. However self-absorbed or grandiose this may sound, just go with it, you will have a much nicer day and be appreciated. If you are not able to do this, do NOT volunteer!
When the biopsy started it was so quiet in the room. Then, I thought the nurse told the doctor that she liked her cast.... I had to speak up: "Really, you have a cast? Like I don't have enough on my mind, your handicapped?" Turns out the nurse liked the doctor's dress. I liked that idea much more. Once I started talking, I did what I normally do when I'm nervous...I talked incessantly though the entire procedure. I had to ask what things were looking like... I've learned that "very suspicious" is a "no comment" way of saying "cancer". Now I have to wait 2 to 3 days to get the results. My Mom is still wanting me to get a second opinion. All I want to know is what do I get a second opinion of ?? Is someone going to tell me it's not there? What?
October 16, 2017
Ok... This is several years later and I'm just reading this wondering how I got to be where I am. The thing about this post that I still remember is how my mom wouldn't let me take my car. She insisted on driving hers... well, anyone who knows me knows that I get car sick when I'm riding with my mom in her car! I remember getting so mad! It seems so silly now , but I think it was just about having control over something....Oh and that she said she was going to try to get her car serviced....REALLY.. . I think I just wanted the day to be about me...omg..how self absorbed???? Another WTF!
Mayo Clinic and "The Broadcast"
August 19, 2010
"A Cancer"
August 18, 2010
"How long has it been there?"
August 16, 2010
Damn, I wish I would have crossed that one off my "to do" list....It wasn't really a priority to learn how to do a self check. No one in my family has had breast cancer. I'm the strong one! Other people get cancer. I'm not going to get it. Come to think of it, how did I even find it? I knew it was there. I made the appointment for my "annual" physical. Make that annual, plus how ever many more months I can take of Lloyd bitching at me to do it, physical...Thank God for Lloyd! This particular year I put it off because I HAD to loose some weight before I went. It's like cleaning the house for the house cleaners. Everything has to be perfect. Last year I had perfect blood work etc.... WTF is that???? I just thought it wasn't anything. It got bigger and smaller, cancer doesn't do that....right? I don't think I asked if it was anything. I had my exam, the Dr didn't say it was anything...Did I even ask? I mean that's why I went... but really, did I say, cop another feel so you can tell me something I don't want to know.....I doubt it. He gave me my regular test orders. Usually, I promptly file them. This year I did get a chest x-ray, it was good. I'll do the mammogram as soon as I have time. Okay, six months later...Holly Shit! Is that a bruise on that knot? I probably fell or bumped into something...maybe I better make that appointment. I actually had a huge debate in my head about checking the "new lump" box. The machine will pick it up if it's anything. I'm really good at blind faith, that is , in anything but myself. I took a breath and checked the box. They signed me up for the diagnostic mammogram. The lady taking the pictures kept saying " How long have you had this?"... I'm not a rocket scientist, but that didn't sound to promising! And really after the third "I'm not sure", give it up. I'm pretty sure that this smashing your boob process does NOT release any memory cells! After the diagnostic mammogram that led to the ultra sound, which led to the look on that radiologists face that said there's a mass to dense to be a cyst and there's inflammation at the lymph nodes. You need to do a biopsy. Got dressed, well, I must have I was sitting in an office and the really nice nurse was saying "let's put you in the 80% category of people whose biopsies are negative"..did you see the radiologist's face? Okay? That lasted a whole hour and a half. I got back to work, my Dr. called and said "I just got your ultra sound results, Toni it looks like you have a cancer in your right breast"...done pretending. Biopsy is scheduled for August 24th.
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